Comments on: Medical Oddity

By: Mitja

Mitja — Tue, 10 May 2011 12:38:49 +0000

Denise: I don’t know of anyone who specializes in it, possibly because it is so rare. For eyes I have found it best to see a retina opthamologist but I’m not sure who to see for any other related conditions. In the United States I used to see an opthamologist named Dr. David Wagner, based in Washington DC and Maryland.

By: Denise Perry

Denise Perry — Mon, 09 May 2011 23:33:09 +0000

I have a grandson who is 9 years old and he was born with Colaboma (Morning Glory Syndrome) it affects both of his eyes but one is much worse. I am looking for any information or any Specialists who may be able to tell us more or perhaps learn more by examining him. He is all boy and does not it affect his life too much. Any information would be appreciated God bless you

By: Witcha

Witcha — Sun, 20 Sep 2009 10:36:42 +0000

Thank you so much.

By: Mitja

Mitja — Sun, 20 Sep 2009 08:03:50 +0000

Witcha: Feel free to email me at navalgazing@navalgazing.com. There is not a lot of information out there as morningglory syndrome is very rare but you should definitely have your child see a specialist if possible. I don’t think it can be fixed but supposedly they might recommend something like covering the good eye (if he has one) so that the damaged eye or brain works hard to compensate or use what vision there is…

By: Witcha

Witcha — Sat, 19 Sep 2009 13:36:50 +0000

My name is Lt.Cdr.Witcha from Royal Thai Navy. My 2.5 years old son has Morning glory also. In Thailand I can’t find much information about this syndrome. If I have some questions about that can I ask you? Thank you for you help.

By: Shannon

Shannon — Sat, 25 Apr 2009 16:40:07 +0000

we were told my son had Morning glory optic nerve in his left eye when he was 3 months old. we have not been able to find much info on it. and the doctor’s said it will be a learning process for them and us as he grows and can tell us more.